person reported outcomes

ECHO PRO Core Publishes Series of Articles on PROMIS® Early Childhood

Posted on by Jodi Snare

ECHO’s Person-Reported Outcomes (PRO) Core published a series of articles on the Patient-Reported Outcome Measurement Information System (PROMIS®) Early Childhood measures in this month’s online edition of the Journal of Pediatric Psychology.

The PROMIS® measures use recent advances in information technology and health survey research to measure person-reported outcomes—such as pain, fatigue, physical functioning, emotional distress, and social role participation—that have a major impact on quality of life.

The PRO Core developed 12 early childhood measures to evaluate common mental, social, and physical health outcomes for children ages 1-5. See below for links to the individual articles. The ECHO Program Office also wrote an introduction to this special series.

The PRO Core, located at Northwestern University in Evanston, Ill., captures the experiences of children and their families who are taking part in ECHO. Led by principal investigators Richard Gershon, PhD, and David Cella, PhD, the PRO Core is responsible for keeping and providing PRO information for researchers, helping researchers use PRO assessments in their study designs, and coordinating plans for updating, approving, and using PRO information in studies.

Forrest/Ganiban: More than the Absence of Disease: Studying Positive Health in ECHO

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More than the Absence of Disease: Studying Positive Health in ECHO

Speaker:

Chris Forrest, MD, PhD

Children’s Hospital of Philadelphia

 

 

 

Jody Ganiban, PhD

George Washington University

 

 

 

Speaker Bios: Chris Forrest is a Pediatrician at Children’s Hospital of Philadelphia, and the Director of the Applied Clinical Research Center. Dr. Forrest’s research focuses on developing novel ways of conducting multi-center pediatric applied clinical research and life course health science. He co-chairs the Positive Health Work Group within ECHO and is a member of the ECHO PRO core.

Dr. Ganiban’s early research focused on parent-child attachment relationships and child temperament, and development within groups of children that differed in their genetic, temperamental, or environmental risks for emotional and behavioral problems. Dr. Ganiban’s research has incorporated behavioral genetic research techniques to examine further the interplay between environmental factors and personal characteristics in determining children’s and parents’ emotional and physical health. Her recent projects include assessments of personality, temperament, and genetic makeup.

Topic:

Positive health is one of the five outcome priority areas for ECHO. It refers to having a state of physical, mental, and social well-being, and broadens our view of health as more than the absence of disease. In this presentation, we will present the science of positive health and ways to study it within ECHO.

Date: Wednesday, August 12, 1 to 2pm

Slides

Richard Gershon: Advances in Pediatric Measurement Science: Implications in ECHO

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Advances in Pediatric Measurement Science: Implications in ECHO

Speaker:

Richard Gershon

Northwestern University

 

 

 

 

 

*If you would like CME credits for attending this presentation, please email Katherine.Simos@duke.edu*

About the Speaker:
Dr. Gershon is the Vice Chair for Research in Medical Social Sciences at Northwestern University’s Feinberg School of Medicine. Dr. Gershon has had a robust career in Patient Report Outcomes (PRO) and Performance Outcomes as he has acted as the principal investigator for the NIH Toolbox for the Assessment of Neurological Function and Behavior and the NIH Roadmap Patient – Reporting Outcomes Measurement Information System (PROMIS) Technical Center. He has served as PI, MPI or co-investigator for over 70 NIH, DoD, and Foundation awards.

Topic Areas: PRO Core, Person-reported outcomes, Patient-reported outcomes

Date: Wednesday, January 8 11, 1 to 2pm

Slides