NIH Releases Report Summary of ECHO-wide Cohort Data Collection Protocol Request for Information (RFI) Responses

On August 11th, 2017 the NIH published an RFI seeking feedback from stakeholders and the general public on the ECHO-wide Cohort Data Collection Protocol. The RFI specifically requested feedback and recommendations on the data element concepts, types of biospecimens, and innovative data collection methodology. The NIH received a number of responses from researchers, professional organizations, nonprofit organizations, and research foundations. View the responses to this RFI here. The NIH thanks all responders for their input.