Cella/Blackwell: Mutuality: What PROMIS Brought to ECHO and What ECHO Brought to PROMIS

ECHO Discovery Summary

On January 12, David Cella, PhD (left) and Courtney Blackwell, PhD, EdM (right) of Northwestern University presented on the development of the Patient-reported Outcomes Measurement Information System (PROMIS).

PROMIS is a unified and adaptable measurement system for evaluating and monitoring the physical, mental, and social health of adults and children. Within ECHO, PROMIS is a valuable resource for harmonizing patient-reported outcome measures across various cohorts, outcome areas, and age groups.

Until recently, PROMIS had only been validated for children over the age of 5. However, new ECHO research led by Dr. Blackwell resulted in the development of PROMIS measures for the reliable evaluation of health behaviors and outcomes during early childhood (PROMIS EC). PROMIS EC emphasizes features and behaviors that parents can easily and objectively observe in their children (e.g., “My child had a temper tantrum when upset or angry” instead of “my child felt upset”).

Speakers:

David Cella, PhD

Northwestern University

Speaker Bio: Dr. Cella is the Ralph Seal Paffenbarger Professor and Chair of the Department of Medical Social Sciences at Northwestern University Feinberg School of Medicine, and an elected member of the National Academy of Medicine. His research portfolio extends from health outcomes measurement and applications to clinical trials, comparative effectiveness, and learning health system implementation. As an expert in applied health status measurement, he has led the development and validation of the FACIT Measurement System, PROMIS, Neuro-QoL, and the emotional health domain of the NIH Toolbox. These measurements are used around the world by thousands, in clinical practice and research.

Courtney K. Blackwell, PhD

Northwestern University

Speaker Bio: Dr. Blackwell is a Research Assistant Professor at Northwestern University’s Feinberg School of Medicine in the Department of Medical Social Sciences. As a co-Investigator for the ECHO Person Reported Outcome (PRO) Core, Dr. Blackwell develops and validates developmentally-sensitive survey and performance measures for young children, particularly in the domain of positive health. Her research focuses on identifying the social environmental factors that promote positive health and functioning across the lifespan.

Date: Wednesday, January 12th, 1 to 2pm ET