ECHO’s Person-Reported Outcomes (PRO) Core published a series of articles on the Patient-Reported Outcome Measurement Information System (PROMIS®) Early Childhood measures in this month’s online edition of the Journal of Pediatric Psychology.
The PROMIS® measures use recent advances in information technology and health survey research to measure person-reported outcomes—such as pain, fatigue, physical functioning, emotional distress, and social role participation—that have a major impact on quality of life.
The PRO Core developed 12 early childhood measures to evaluate common mental, social, and physical health outcomes for children ages 1-5. See below for links to the individual articles. The ECHO Program Office also wrote an introduction to this special series.
- Bringing PROMIS® to Early Childhood: An Overview and Qualitative Methods for Evaluating Physical, Mental, and Social Health in Developmental Context (David Cella, PhD)
- Psychometric Considerations in Developing PROMIS® Measures for Early Childhood (Jin-Shei Lai, PhD)
- Measuring PROMIS® Global Health in Early Childhood (Michael Kallen, PhD, MPH)
- Measuring PROMIS® Physical Activity and Sleep Health in Early Childhood (Jin-Shei Lai, PhD)
- Measuring PROMIS® Emotional Distress in Early Childhood (Phillip Sherlock, PhD)
- Measuring PROMIS® Well-Being in Early Childhood (Courtney Blackwell, PhD)
- Measuring PROMIS® Social Relationships in Early Childhood (Courtney Blackwell, PhD)
The PRO Core, located at Northwestern University in Evanston, Ill., captures the experiences of children and their families who are taking part in ECHO. Led by principal investigators Richard Gershon, PhD, and David Cella, PhD, the PRO Core is responsible for keeping and providing PRO information for researchers, helping researchers use PRO assessments in their study designs, and coordinating plans for updating, approving, and using PRO information in studies.